Today is day six of the diet although it's day four of Toby's meals being completely Ketogenic. My lack of blogging has quite simply been lack of time.... i'm not going to lie, the diet has completely taken up every last bit of my time and thoughts and energy over these past few days.

The adrenaline that was pumping through my system last week has well and truly nose dived into exhaustion BUT has it been worthwhile? ...................... YES!

To be honest I could have blogged a new improvement every day so far however my mind has been making me question the miracle that I think is unfolding.......... Are you noticing more because your paying more attention? I would question myself.... are the seizures milder? is he more alert or is he simply having good days? Am I imagining it? I have taken videos, asked family and scrutinised every minute of Toby's days.... scared to share too much info incase I jinx the effects by talking about it. Any parent who has tried endless medicines will relate to that.....it's like someone is waiting for you to smile then they send another batch of seizures...

I have become too scared to believe (and I still am ) that this could be working, yet I have justified my feelings and told myself still don't expect too much, whatever the positives, THEY ARE POSITIVE...

Toby is interacting more, he is more content, his myoclonic cluster spasms have more than halved in frequency.... they are milder,  30 to 12! Then this morning no clusters, the odd startle seizure but NONE :)

Scared to put Toby for his nap I did, he needs his rest, then upon waking a few mild nods spread apart, Toby alert in between and 'not out of it' still positive signs!!!!

We have a LONG way to go, it is still early days and I will never take for granted that this can change in an instant, however for those following I will leave you with this thought..... I have never ever had as much faith and hope as I do at the moment, I am so glad that the hard work is paying off so soon.... I hope that you will continue to read to find out more good things........

Speak soon