www.thedaisygarland.org.uk
Thanks to the funds raised by The Daisy Garland Charity Toby has been granted the wish to trial the Ketogenic Diet.
Tomorrow we will substitute Toby's breakfast and by the weekend he will be on the full thing which consists of a high fat : low protein : restricted Carbohydrate meal plan.
I am overwhelmed by the testimonials that I have read from other parents who have children with difficult to control epilepsy. I can only concur with my similar mixed feelings of hope, excitement and fear all in one.
We have learnt to accept the changes in our lives since Toby developed seizures for which we have no cause. We can cope with any lasting effects that they have caused. We just pray for some respite, for our little boy to enjoy the activities he loves with a reduced risk of danger from his seizures.
I will blog in a couple of days when Toby has reached ketosis..........
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