Firstly let me apologise for my out of date posts, the truth is that so many changes have taken place in Toby's condition. Since starting the Vigabatrin we have seen improvements in Toby's spasms as they reduced to blinks, however his myoclonic encephalopathy continued and presented in a fierce nature. Tobys consultant decided to change his steroid to a natural hormone steroid injection called ACTH an intramuscular injection every other day for 4 weeks :-/
Toby responded well through January however his weight naturally rocketed and he became very vacant towards the end,.8 weeks of steroid had taken its toll but dione a very important thing ..... Stopped Tobys epileptic spasms ! The myoclonic type seizures had been reduced to blinks and for three weeks I managed to do some fairly 'normal ' Activities :)
Is this it? Are we a step closer to stopping these awful seizures ? The next step is the weaning process .... We will soon know if the ACTH has worked .... Keep you posted :)
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